“Better and Faster” Access to NHS Data for Researchers Granted
The Prime Minister has today announced action to accelerate the discovery of life-saving drugs, improve patient care and make Britain the best place in the world for medical research.
The Government and the Wellcome Trust will invest up to £600 million to create a new Health Data Research Service. This will transform the access to NHS data by providing a secure single access point to national-scale datasets, slashing red tape for researchers.
Clinical trials will also be fast-tracked to accelerate the development of the medicines and therapies of the future, with the current time it takes to get a clinical trial set up cut to 150 days by March 2026 – where latest data collected in 2022 was over 250 days.
Details of the Plan
This will be achieved by cutting bureaucracy and standardising contracts so time isn’t wasted on negotiating separate details across different NHS organisations, and ensuring transparency by publishing trust level data for the first time.
Through this new drive, patients will have improved access to new treatments and technologies. We already saw the power of health data during the pandemic and this will allow the NHS to make huge strides in patient care.
The changes are a major boost for the life sciences sector as the Government goes further and faster in delivering the Plan for Change and reshaping our economy in response to the new era of global insecurity.
They follow key steps to support the British car industry and form part of our modern Industrial Strategy, which includes life sciences. Full plans will be published alongside the Spending Review later this year.
What the Government Had to Say
Prime Minister, Keir Starmer, said, “The new era of global insecurity requires a Government that steps up, not stands aside. That is why we are going further and faster in reshaping our economy and delivering our Plan for Change.”
The measures I am announcing today will turbo-charge medical research and deliver better patient care. I am determined to make Britain the best place in the world to invest in medical research.
That is not just good for patients and their families. It means growth that puts more money in working people’s pockets with more, better paid jobs.
Patient confidentiality will continue to be held to a gold standard with these changes – with rigorous security measures being in place, like anonymity and virtual locked rooms, to ensure no one’s health data is compromised.
The Health Data Research Service brings access to data for medical research into one secure and easy-to-use location, meaning a researcher doesn’t have to navigate different systems or make multiple applications for information for the same project.
This improvement – which will begin from the end of 2026 – will speed up the process and could set the UK on a path to cure cancer, dementia, and arthritis quicker, which will improve patient outcomes and help turbocharge the economy.
It Follows the Recent Decision to Scrap NHS England
The new service will be housed at the Wellcome Genome Campus in Cambridgeshire, where Wellcome is building a range of new R&D lab and office spaces to expand the current campus’s capacity for innovative genomics and biodata companies.
Health and Social Care Secretary, Wes Streeting, explained, “Our Plan for Change will unleash the unparalleled power of NHS data, catalysing our efforts to fix the broken health service.”
We will unblock the barriers preventing our greatest scientists from safely accessing what they need to save patients’ lives – while keeping data secure.
Adding to this, John-Arne Røttingen, Chief Executive of Wellcome, said, “There is so much more we could learn from health data in this country by joining it up better.
“The new service will give researchers a way to easily harness the data held across different parts of the NHS. The simpler it is to analyse data or identify patients to join clinical trials, the more quickly we can improve our understanding of illness and develop new treatments.”
Providing a single, secure service for approved researchers will take away the significant overhead associated of locating, accessing and comparing disparate datasets.
It will create opportunities for patients to access new treatments through trials that would otherwise have been hard to arrange or conduct.
